Story Bank


Understanding how the system works

My father’s health was getting progressively worse, and his needs were quickly increasing as I tried to find additional in home support. Eventually he ended up in hospital, and it was then clear he was unable to return home. After some issues, the hospital found […]

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I resented being a ‘sudden’ carer

At the same time when caring for my mum with Alzheimer’s, I was diagnosed with chronic disease. I needed my mum, but our roles had reversed, I was now the primary carer – a role I didn’t want or felt I was equipped to take […]

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You’re more than you

Mark and Linda care for each other. Linda has MS. They love to travel and take on new adventures. Linda has a carer, Martha, that comes in once a week for respite. We didn’t want a babysitter. We wanted to use the time so Linda […]

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I didn’t let the doctor overrule my opinion

Lauren has been living with MS for 31 years. Matt has always passionately advocated for Lauren’s rights. Lauren had a change in medication and took a turn for the worse; I noticed changes and new symptoms that were not normal. My doctor overruled me… I […]

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My little notebook to the rescue

My husband Bob suffered a stroke when he was 49. It took 5 months of rehabilitation to get him to relearn everything without the use of his left side of the body, including walking and talking. I was getting frustrated by doctors and practice nurses […]

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Caring for my mother diagnosed with dementia

When my mother was diagnosed with dementia I didn’t have a clue what was in front of me. I didn’t know anyone with this condition; no one in my family apart from my grandmother had lived long enough to experience it. The only grandmother I […]

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